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2022

De Clercq, Eva and Rost, Michael and von der Weid, Nicolas and Ansari, Marc and Elger, Bernice Simone. (2022) To be or not to be in the social media arena? The perspective of healthcare providers working within adolescent and young adult oncology in Switzerland. International Journal of Adolescent Medicine and Health, 34 (6). pp. 417-429.

Rost, Michael and Espeli, Vittoria and Ansari, Marc and von der Weid, Nicolas and Elger, Bernice S. and De Clercq, Eva. (2022) Covid-19 and beyond: Broadening horizons about social media use in oncology. A survey study with healthcare professionals caring for youth with cancer. Health policy and technology. p. 100610.

Rost, Michael and De Clercq, Eva and Büchler, Andrea and Elger, Bernice. (2022) Ethische und rechtliche Einordnung zur Autonomie Gebärender - Encadrement éthique et juridique de l'autonomie des parturientes. Obstetrica. pp. 44-47.

2021

Starke, Georg and De Clercq, Eva and Borgwardt, Stefan and Elger, Bernice Simone. (2021) Computing schizophrenia: ethical challenges for machine learning in psychiatry. Psychological medicine, 51 (15). pp. 2515-2521.

Starke, Georg and De Clercq, Eva and Borgwardt, Stefan and Elger, Bernice Simone. (2021) Why educating for clinical machine learning still requires attention to history: a rejoinder to Gauld; et al. Psychological medicine, 51 (14). pp. 2512-2513.

Starke, Georg and De Clercq, Eva and Elger, Bernice S.. (2021) Towards a pragmatist dealing with algorithmic bias in medical machine learning. Medicine, Health Care and Philosophy, 24 (3). pp. 341-349.

2020

Favaretto, Maddalena and De Clercq, Eva and Schneble, Christophe Olivier and Elger, Bernice Simone. (2020) What is your definition of Big Data? Researchers' understanding of the phenomenon of the decade. PLoS ONE, 15 (2). e0228987- .

Favaretto, Maddalena and Shaw, David and De Clercq, Eva and Joda, Tim and Elger, Bernice Simone. (2020) Big Data and Digitalization in Dentistry: A Systematic Review of the Ethical Issues. International journal of environmental research and public health, 17 (7). p. 2495.

De Clercq, Eva and Rost, Michael and Gumy-Pause, Fabienne and Diesch, Tamara and Espelli, Victoria and Elger, Bernice S.. (2020) Moving Beyond the Friend-Foe Myth: A Scoping Review of the Use of Social Media in Adolescent and Young Adult Oncology. Journal of Adolescent and Young Adult Oncology, 9 (5). pp. 561-571.

De Clercq, Eva and Favaretto, Maddalena and Luceri, Marco. (2020) Towards an ethics of curiosity? The role of cinema in medical education on variations of sexual development. Journal of Contemporary Medical Education, 10 (4). pp. 102-113.

Richter, Gesine and De Clercq, Eva and Mertz, Marcel and Buyx, Alena. (2020) Reporting of secondary findings in genomic research: Stakeholders' attitudes and preferences. In: Secondary Findings in Genomic Research : A volume in Translational and Applied Genomics. San Diego, pp. 99-132.

Rost, Michael and De Clercq, Eva and Arnold, Louisa. (2020) "Boiling up the problem of violence" in childbirth?-an ethical viewpoint on medical professional responses to women's reports of mistreatment in childbirth. Ethik in der Medizin, 32. pp. 189-193.

Favaretto, Maddalena and De Clercq, Eva and Briel, Matthias and Elger, Bernice Simone. (2020) Working Through Ethics Review of Big Data Research Projects: An Investigation into the Experiences of Swiss and American Researchers. Journal of Empirical Research on Human Research Ethics, 15 (4). pp. 339-354.

Favaretto, Maddalena and De Clercq, Eva and Gaab, Jens and Elger, Bernice Simone. (2020) First do no harm: An exploration of researchers' ethics of conduct in Big Data behavioral studies. PLoS ONE, 15 (11). e0241865.

2019

Favaretto, Maddalena and De Clercq, Eva and Elger, Bernice Simone. (2019) Big Data and discrimination: perils, promises and solutions. A systematic review. Journal of Big Data, 6 (12). pp. 1-27.

De Clercq, Eva and Rost, Michael and Rakic, Milenko and Ansari, Marc and Brazzola, Pierluigi and Wangmo, Tenzin and Elger, Bernice S.. (2019) The conceptual understanding of pediatric palliative care: a Swiss healthcare perspective. BMC palliative care, 18 (55). pp. 1-12.

Cheng, Brian T. and Rost, Michael and De Clercq, Eva and Arnold, Louisa and Elger, Bernice S. and Wangmo, Tenzin. (2019) Palliative care initiation in pediatric oncology patients: A systematic review. Cancer medicine, 8 (1). pp. 3-12.

Rost, Michael and De Clercq, Eva and Rakic, Milenko and Wangmo, Tenzin and Elger, Bernice. (2019) Barriers to Palliative Care in Pediatric Oncology in Switzerland: A Focus Group Study. Journal of Pediatric Oncology Nursing, 37 (1). pp. 35-45.

De Clercq, Eva and Streuli, Jürg. (2019) Special Parents for "Special" Children? The Narratives of Health Care Providers and Parents of Intersex Children. Narrative Inquiry in Bioethics, 9 (2). pp. 133-147.

De Clercq, Eva and Streuli, Jürg and Ruhe, Katherina and Elger, Bernice S.. (2019) "Undoing" Capacity: The Capability Approach in Pediatrics. Perspectives in Biology and Medicine, 62 (2). pp. 319-336.

Badarau, D. Oana and De Clercq, Eva and Elger, Bernice S.. (2019) Continuous Deep Sedation and Euthanasia in Pediatrics: Does One Really Exclude the Other for Terminally Ill Patients? Journal of Medicine and Philosophy, 44 (1). pp. 50-70.

2018

Rost, Michael and De Clercq, Eva and Elger, Bernice. (2018) Arno Gruen's understanding of autonomy in children: Experiencing and integrating one's own feelings and needs. Swiss medical weekly. pp. 1-3.

De Clercq, Eva and Ruhe, Katharina. (2018) The Best Interest Standard: An Exhaustive Guide for Medical Decision Making in Pediatrics? The American journal of bioethics, 18 (8). pp. 69-71.

De Clercq, Eva. (2018) Disability @ the movies: Toward a Disability Conscious Bioethics. In: Contemporary Debates in Bioethics: European Perspectives. Berlin, pp. 97-107.

De Clercq, Eva. (2018) Etica del gender. Etiche speciali, 4. Brescia.

2017

De Clercq, E. and Ruhe, K. M. and Rost, M. and Elger, B. S.. (2017) Is decision-making capacity and "essentially contested" concept in pediatrics? Medicine, Health Care and Philosophy, 20 (3). pp. 425-433.

Rost, Michael and De Clercq, Eva and Wangmo, Tenzin and Elger, Bernice S.. (2017) The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines. Journal of Hospice & Palliative Nursing, 19 (6). pp. 556-564.

De Clercq, Eva and Rost, Michael and Pacurari, Nadia and Elger, Bernice and Wangmo, Tenzin. (2017) Aligning guidelines and medical practice: Literature review on pediatric palliative care guidelines. Palliative & supportive care, 15 (4). pp. 474-489.

De Clercq, Eva and Elger, Bernice Simone and Wangmo, Tenzin. (2017) Missing life stories. The narratives of palliative patients, parents and physicians in paediatric oncology. European Journal of Cancer Care, 26 (6). pp. 1-16.

Elger, Bernice S. and De Clercq, Eva. (2017) Returning Results: Let's Be Honest! Genetic testing and molecular biomarkers, 21 (3). pp. 134-139.

De Clercq, Eva and Kaye, Jane and Wolf, Susan M. and Koenig, Barbara A. and Elger, Bernice Simone. (2017) Returning Results in Biobank Research: Global Trends and Solutions. Genetic testing and molecular biomarkers, 21 (3). pp. 128-131.

Princewill, Chitu Womehoma and De Clercq, Eva and Riecher-Rössler, Anita and Jegede, Ayodele Samuel and Wangmo, Tenzin and Elger, Bernice S.. (2017) Education and Reproductive Autonomy: The Case of Married Nigerian Women. Narrative Inquiry in Bioethics, 7 (3). pp. 231-244.

De Clercq, Eva. (2017) L’orizzonte antropologico del “sesso” Le esperienze vissute dei giovani adulti intersessuali. Appunti di cultura e politica, 40 (5). pp. 20-27.

2016

Wangmo, T. and De Clercq, E. and Ruhe, K. and Beck-Popovic, M. and Rischewski, J. and Angst, R. and Ansari, M. and Elger, BS.. (2016) Better to know than to imagine: Including children in their health care. AJOB Empirical Bioethics, 8 (1). pp. 11-20.

Badarau, D. O. and De Clercq, E. and Wangmo, T. and Dragomir, M. and Miron, I. and Kühne, T. and Elger , B. S.. (2016) Cancer care in Romania: challenges and pitfalls of children’s and adolescents’ multifaceted involvement. Journal of Medical Ethics, 42 (12). pp. 757-761.

Badarau, Domnita O. and Ruhe, Katharina and Kühne, Thomas and De Clercq, Eva and Anca, Colita and Elger, Bernice S. and Wangmo, Tenzin. (2016) Decision making in pediatric oncology: Views of parents and physicians in two European countries. AJOB Empirical Bioethics, 8 (1). pp. 21-31.

Badarau, Domnita O. and De Clercq, Eva and Wangmo, Tenzin and Dragomir, Monica and Miron, Ingrid and Kühne, Thomas and Elger, Bernice S.. (2016) Cancer care in Romania: challenges and pitfalls of children's and adolescents' multifaceted involvement. Journal of medical ethics, 42 (12). pp. 757-761.

Ruhe, Katharina Maria and Wangmo, Tenzin and De Clercq, Eva and Badarau, Domnita Oana and Ansari, Marc and Kühne, Thomas and Niggli, Felix and Elger, Bernice Simone. (2016) Putting patient participation into practice in pediatrics-results from a qualitative study in pediatric oncology. European Journal of Pediatrics, 175 (9). pp. 1147-1155.

Ruhe, Katharina M. and De Clercq, Eva and Wangmo, Tenzin and Elger, Bernice S.. (2016) Relational Capacity: Broadening the Notion of Decision-Making Capacity in Paediatric Healthcare. Journal of Bioethical Inquiry. pp. 1-10.

De Clercq, Eva. (2016) Guardare attraverso il "genere": una lente per scoprire un nuovo mondo etico. Teoria. Rivista di filosofia fondata da Vittorio Sainati, 36 (2). pp. 105-118.

2015

Elger, Bernice S. and De Clercq, Eva. (2015) Collaborative projects involving research biobanks – ethical and legal aspects of data protection. Bioethica Forum, 8 (2). pp. 42-46.

2014

De Clercq, Eva and Badarau, Oana and Ruhe, Katharina and Wangmo, Tenzin. (2014) Body matters : Rethinking the ethical acceptability of non-beneficial clinical research with children. Medicine, health care and philosophy, Vol. 18, H. 3. pp. 421-431.