Special Parents for "Special" Children? The Narratives of Health Care Providers and Parents of Intersex Children

De Clercq, Eva and Streuli, Jürg. (2019) Special Parents for "Special" Children? The Narratives of Health Care Providers and Parents of Intersex Children. Narrative Inquiry in Bioethics, 9 (2). pp. 133-147.

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Decisions on the clinical management of children with an intersex condition heavily depend on the kind of information parents receive from healthcare professionals. This paper aims to explore this influence by analyzing the stories of parents and care providers. The presented data come from 19 semi-structured interviews with parents of intersex children and healthcare professionals specializing in intersex conditions in Switzerland and Germany. Arthur Frank's narrative framework was used to analyze the stories and sort out which kind of cultural threads were available to participants to make sense of their experience. Although many healthcare providers discouraged early genitoplasty, they believed that the decision not to operate required unique parenting skills, which few parents possess. This vision was shared by the parents in our sample. Some parents also projected this specialness upon their children, viewing the condition as a special gift, and as a possibility of personal growth.
Faculties and Departments:08 Cross-disciplinary Subjects > Ethik > Institut für Bio- und Medizinethik
UniBasel Contributors:De Clercq, Eva
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Johns Hopkins University Press
Note:Publication type according to Uni Basel Research Database: Journal article
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Last Modified:21 Oct 2019 14:19
Deposited On:21 Oct 2019 14:19

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