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The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines

Rost, Michael and De Clercq, Eva and Wangmo, Tenzin and Elger, Bernice S.. (2017) The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines. Journal of Hospice & Palliative Nursing, 19 (6). pp. 556-564.

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Official URL: http://edoc.unibas.ch/57204/

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Abstract

Conceptual confusion is a primary barrier to providing quality palliative care. This study aimed to analyze pediatric palliative care (PPC) guidelines from a conceptual perspective to facilitate a shared understanding of palliative care in pediatrics. Five online databases were searched systematically, in addition to a Google search. Analysis focused on the language used to determine the domains of PPC and on the composition of the PPC team. Guidelines express consensus on 4 core domains: physical, psychological, social, and spiritual care. However, conceptual vagueness exists with respect to the latter 3 because terminology is used inconsistently both within and across guidelines. An inconsistent use of terminology affects the quality of PPC nursing in various ways. Therefore, a shared understanding and unambiguous language must be envisaged. Furthermore, although guidelines agree on the most prominent team members, they do not clearly indicate how these occupational groups should collaborate.
Faculties and Departments:03 Faculty of Medicine
UniBasel Contributors:De Clercq, Eva and Wangmo, Tenzin and Elger, Bernice Simone and Rost, Michael
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Wolter Kluwers Health
ISSN:1522-2179
e-ISSN:1539-0705
Note:Publication type according to Uni Basel Research Database: Journal article
Language:English
Identification Number:
Last Modified:15 Oct 2019 14:56
Deposited On:14 Oct 2019 13:23

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