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Body matters : Rethinking the ethical acceptability of non-beneficial clinical research with children

De Clercq, Eva and Badarau, Oana and Ruhe, Katharina and Wangmo, Tenzin. (2014) Body matters : Rethinking the ethical acceptability of non-beneficial clinical research with children. Medicine, health care and philosophy, Vol. 18, H. 3. pp. 421-431.

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Official URL: http://edoc.unibas.ch/dok/A6328866

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Abstract

The involvement of children in non-beneficial clinical research is extremelyimportant for improving pediatric care, but its ethical acceptability is stilldisputed. Therefore, various pro-research justifications have been proposedthroughout the years. The present essay aims at contributing to the on-goingdiscussion surrounding children’s participation in non-beneficialclinical research. Building on Wendler’s ‘contribution to a valuable project’justification, but going beyond a risk/benefit analysis, it articulates apro-research argument which appeals to a phenomenological view on thebody and vulnerability. It is claimed that children’s bodies are not merephysical objects, but body-subjects due to which children, as persons, cancontribute to research that may hold no direct clinical benefit to them evenbefore they can give informed consent.
Faculties and Departments:08 Cross-disciplinary Subjects > Ethik > Institut für Bio- und Medizinethik
UniBasel Contributors:De Clercq, Eva and Ruhe, Katharina and Wangmo, Tenzin and Badarau, Domnita
Item Type:Article, refereed
Article Subtype:Research Article
Bibsysno:Link to catalogue
Publisher:Kluwer Academic
ISSN:1386-7423
Note:Publication type according to Uni Basel Research Database: Journal article
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Last Modified:04 Sep 2015 14:30
Deposited On:04 Sep 2015 14:30

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