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A National Survey Comparing Patients' and Transplant Professionals' Research Priorities in the Swiss Transplant Cohort Study

Beckmann, Sonja and Mauthner, Oliver and Schick, Liz and Rochat, Jessica and Lovis, Christian and Boehler, Annette and Binet, Isabelle and Huynh-Do, Uyen and De Geest, Sabina and Psychosocial Interest Group, and Swiss Transplant Cohort Study, . (2022) A National Survey Comparing Patients' and Transplant Professionals' Research Priorities in the Swiss Transplant Cohort Study. Transplant International, 35. p. 10255.

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Abstract

We aimed to identify, assess, compare and map research priorities of patients and professionals in the Swiss Transplant Cohort Study. The project followed 3 steps. 1) Focus group interviews identified patients' (; n; = 22) research priorities. 2) A nationwide survey assessed and compared the priorities in 292 patients and 175 professionals. 3) Priorities were mapped to the 4 levels of Bronfenbrenner's ecological framework. The 13 research priorities (financial pressure, medication taking, continuity of care, emotional well-being, return to work, trustful relationships, person-centredness, organization of care, exercise and physical fitness, graft functioning, pregnancy, peer contact and public knowledge of transplantation), addressed all framework levels: patient (; n; = 7), micro (; n; = 3), meso (; n; = 2), and macro (; n; = 1). Comparing each group's top 10 priorities revealed that continuity of care received highest importance rating from both (92.2% patients, 92.5% professionals), with 3 more agreements between the groups. Otherwise, perspectives were more diverse than congruent: Patients emphasized patient level priorities (emotional well-being, graft functioning, return to work), professionals those on the meso level (continuity of care, organization of care). Patients' research priorities highlighted a need to expand research to the micro, meso and macro level. Discrepancies should be recognized to avoid understudying topics that are more important to professionals than to patients.
Faculties and Departments:03 Faculty of Medicine > Departement Public Health > Institut für Pflegewissenschaft
UniBasel Contributors:Beckmann, Sonja and Mauthner, Oliver and De Geest, Sabina M.
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Frontiers Media
ISSN:0934-0874
e-ISSN:1432-2277
Note:Publication type according to Uni Basel Research Database: Journal article
Language:English
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edoc DOI:
Last Modified:16 Jun 2022 11:35
Deposited On:16 Jun 2022 11:35

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