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Don't take it personal : European Union legal aspects of procuring and protecting environmental exposure data in population biobanks through the use of a geo-information-systems toolkit

Bovenberg, Jasper Adriaan and de Hoogh, Kees and Knoppers, Bartha Maria and Hveem, Kristian and Hansell, Anna L.. (2016) Don't take it personal : European Union legal aspects of procuring and protecting environmental exposure data in population biobanks through the use of a geo-information-systems toolkit. Biopreservation and biobanking, 14 (3). pp. 217-223.

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Official URL: http://edoc.unibas.ch/43617/

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Abstract

Under European Union (EU) law, population-based cohort studies have the right to collect environmental data and to access geospatial data, at street level, on the web, from a host of public sources. As to geospatial information, they should be able to avail themselves of Member States' networks of services for geospatial data sets and services (discovery, viewing, downloading) via the Internet. On the other hand, linkage of health data of biobank participants to environmental data, using geospatial data, is limited, as it must satisfy the provisions of the EU Directive on the Protection of Personal Data, pursuant to which geospatial data regarding biobank participants are likely to qualify as personal data. Hence, we submit that the consents of biobank participants be reviewed to assess whether they cover the generation and linkage of geospatial data. We also submit that biobanks must have measures in place to prevent the re-identification of participants by use of their geospatial data. We present a model Geographic-Information-Systems (GIS) Toolkit, as an example of what measures could be taken to that effect.
Faculties and Departments:09 Associated Institutions > Swiss Tropical and Public Health Institute (Swiss TPH)
09 Associated Institutions > Swiss Tropical and Public Health Institute (Swiss TPH) > Department of Epidemiology and Public Health (EPH) > Environmental Exposures and Health > Physical Hazards and Health (Röösli)
UniBasel Contributors:de Hoogh, Kees
Item Type:Article, refereed
Publisher:Liebert
ISSN:1947-5543
Note:Publication type according to Uni Basel Research Database: Journal article
Identification Number:
Last Modified:31 Aug 2016 13:19
Deposited On:31 Aug 2016 13:19

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