Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG)

Steeb, Theresa and Wessely, Anja and Alter, Mareike and Bayerl, Christiane and Bender, Armin and Bruning, Guido and Dabrowski, Evelyn and Debus, Dirk and Devereux, Nina and Dippel, Edgar and Drexler, Konstantin and Dücker, Pia and Dummer, Reinhard and Emmert, Steffen and Elsner, Peter and Enk, Alexander and Gebhardt, Christoffer and Gesierich, Anja and Goebeler, Matthias and Goerdt, Sergij and Goetze, Steven and Gutzmer, Ralf and Haferkamp, Sebastian and Hansel, Gesina and Hassel, Jessica C. and Heinzerling, Lucie and Kähler, Katharina C. and Kaume, Kjell M. and Krapf, Wolfgang and Kreuzberg, Nicole and Lehmann, Percy and Livingstone, Elisabeth and Löffler, Harald and Loquai, Carmen and Mauch, Cornelia and Mangana, Johanna and Meier, Friedegund and Meissner, Markus and Moritz, Rose K. C. and Maul, Lara Valeska and Müller, Verena and Mohr, Peter and Navarini, Alexander and Van Nguyen, Ahn and Pfeiffer, Christiane and Pföhler, Claudia and Posch, Christian and Richtig, Erika and Rompel, Rainer and Sachse, Michael M. and Sauder, Stefanie and Schadendorf, Dirk and Schatton, Kerstin and Schulze, Hans-Joachim and Schultz, Erwin and Schilling, Bastian and Schmuth, Matthias and Simon, Jan C. and Streit, Markus and Terheyden, Patrick and Thiem, Alexander and Tüting, Thomas and Welzel, Julia and Weyandt, Gerhard and Wesselmann, Ulrich and Wollina, Uwe and Ziemer, Mirjana and Zimmer, Lisa and Zutt, Markus and Berking, Carola and Schlaak, Max and Heppt, Markus V. and German Dermatologic Cooperative Oncology Group, . (2021) Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG). Journal of cancer research and clinical oncology, 147 (6). pp. 1763-1771.

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Official URL: https://edoc.unibas.ch/80445/

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Abstract

Uveal melanoma (UM) is an orphan cancer of high unmet medical need. Current patterns of care and surveillance remain unclear as they are situated in an interdisciplinary setting.; A questionnaire addressing the patterns of care and surveillance in the management of patients with uveal melanoma was distributed to 70 skin cancer centers in Austria, Germany and Switzerland. Frequency distributions of responses for each item of the questionnaire were calculated.; 44 of 70 (62.9%) skin cancer centers completed the questionnaire. Thirty-nine hospitals were located in Germany (88.6%), three in Switzerland (6.8%) and two in Austria (4.5%). The majority (68.2%) represented university hospitals. Most patients with metastatic disease were treated in certified skin cancer centers (70.7%, 29/41). Besides, the majority of patients with UM were referred to the respective skin cancer center by ophthalmologists (87.2%, 34/39). Treatment and organization of follow-up of patients varied across the different centers. 35.1% (14/37) of the centers stated to not perform any screening measures.; Treatment patterns of patients with uveal melanoma in Germany, Austria and Switzerland remain extremely heterogeneous. A guideline for the treatment and surveillance is urgently needed.

Faculties and Departments:	03 Faculty of Medicine > Bereich Spezialfächer (Klinik) > Dermatologie USB > Dermatologie (Navarini) 03 Faculty of Medicine > Departement Klinische Forschung > Bereich Spezialfächer (Klinik) > Dermatologie USB > Dermatologie (Navarini)
UniBasel Contributors:	Navarini, Alexander
Item Type:	Article, refereed
Article Subtype:	Research Article
Publisher:	Springer
ISSN:	0171-5216
e-ISSN:	1432-1335
Note:	Publication type according to Uni Basel Research Database: Journal article
Identification Number:	doi: 10.1007/s00432-020-03450-0 pmid: 33219855
Last Modified:	21 Jun 2021 12:19
Deposited On:	21 Jun 2021 12:19

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