Schneble, Christophe Olivier and Elger, Bernice Simone and Shaw, David Martin. (2020) All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent. Journal of Medical Internet Research, 22 (5). e16879.
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Official URL: https://edoc.unibas.ch/79298/
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Abstract
Tremendous growth in the types of data that are collected and their interlinkage are enabling more predictions of individuals' behavior, health status, and diseases. Legislation in many countries treats health-related data as a special sensitive kind of data. Today's massive linkage of data, however, could transform "nonhealth" data into sensitive health data. In this paper, we argue that the notion of health data should be broadened and should also take into account past and future health data and indirect, inferred, and invisible health data. We also lay out the ethical and legal implications of our model.
| Faculties and Departments: | 08 Cross-disciplinary Subjects > Ethik > Institut für Bio- und Medizinethik > Bio- und Medizinethik (Elger) 03 Faculty of Medicine > Departement Public Health > Ethik in der Medizin > Bio- und Medizinethik (Elger) |
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| UniBasel Contributors: | Schneble, Christophe Olivier and Elger, Bernice Simone and Shaw, David |
| Item Type: | Article, refereed |
| Article Subtype: | Research Article |
| Publisher: | JMIR Publications |
| ISSN: | 1439-4456 |
| e-ISSN: | 1438-8871 |
| Note: | Publication type according to Uni Basel Research Database: Journal article |
| Related URLs: | |
| Identification Number: |
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| Last Modified: | 28 Dec 2020 08:37 |
| Deposited On: | 28 Dec 2020 08:37 |
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