Making sense of big data in health research: Towards an EU action plan

Auffray, Charles and Balling, Rudi and Barroso, Inês and Bencze, László and Benson, Mikael and Bergeron, Jay and Bernal-Delgado, Enrique and Blomberg, Niklas and Bock, Christoph and Conesa, Ana and Del Signore, Susanna and Delogne, Christophe and Devilee, Peter and Di Meglio, Alberto and Eijkemans, Marinus and Flicek, Paul and Graf, Norbert and Grimm, Vera and Guchelaar, Henk-Jan and Guo, Yi-Ke and Gut, Ivo Glynne and Hanbury, Allan and Hanif, Shahid and Hilgers, Ralf-Dieter and Honrado, Ángel and Hose, D. Rod and Houwing-Duistermaat, Jeanine and Hubbard, Tim and Janacek, Sophie Helen and Karanikas, Haralampos and Kievits, Tim and Kohler, Manfred and Kremer, Andreas and Lanfear, Jerry and Lengauer, Thomas and Maes, Edith and Meert, Theo and Müller, Werner and Nickel, Dörthe and Oledzki, Peter and Pedersen, Bertrand and Petkovic, Milan and Pliakos, Konstantinos and Rattray, Magnus and I. Màs, Josep Redón and Schneider, Reinhard and Sengstag, Thierry and Serra-Picamal, Xavier and Spek, Wouter and Vaas, Lea A. I. and van Batenburg, Okker and Vandelaer, Marc and Varnai, Peter and Villoslada, Pablo and Vizcaíno, Juan Antonio and Wubbe, John Peter Mary and Zanetti, Gianluigi. (2016) Making sense of big data in health research: Towards an EU action plan. Genome medicine, 8 (1). p. 71.

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Official URL: http://edoc.unibas.ch/53568/

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Abstract

Medicine and healthcare are undergoing profound changes. Whole-genome sequencing and high-resolution imaging technologies are key drivers of this rapid and crucial transformation. Technological innovation combined with automation and miniaturization has triggered an explosion in data production that will soon reach exabyte proportions. How are we going to deal with this exponential increase in data production? The potential of "big data" for improving health is enormous but, at the same time, we face a wide range of challenges to overcome urgently. Europe is very proud of its cultural diversity; however, exploitation of the data made available through advances in genomic medicine, imaging, and a wide range of mobile health applications or connected devices is hampered by numerous historical, technical, legal, and political barriers. European health systems and databases are diverse and fragmented. There is a lack of harmonization of data formats, processing, analysis, and data transfer, which leads to incompatibilities and lost opportunities. Legal frameworks for data sharing are evolving. Clinicians, researchers, and citizens need improved methods, tools, and training to generate, analyze, and query data effectively. Addressing these barriers will contribute to creating the European Single Market for health, which will improve health and healthcare for all Europeans.

Faculties and Departments:	05 Faculty of Science > Departement Biozentrum > Computational & Systems Biology > Bioinformatics (Schwede) 10 Zentrale universitäre Einrichtungen > sciCORE
UniBasel Contributors:	Schwede, Torsten and Sengstag, Thierry and Sengstag, Thierry
Item Type:	Article
Article Subtype:	Research Article
ISSN:	1756-994X
Note:	Publication type according to Uni Basel Research Database: Journal article
Identification Number:	doi: 10.1186/s13073-016-0323-y pmid: 27338147 isi: 000378592900001
Last Modified:	14 Feb 2017 11:07
Deposited On:	14 Feb 2017 11:07

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