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EUSTAR biobanking : recommendations for the collection, storage and distribution of biospecimens in scleroderma research

Beyer, Christian and Distler, Jörg H. W. and Allanore, Yannick and Aringer, Martin and Avouac, Jérôme and Czirják, László and Cutolo, Maurizio and Damjanov, Nemanja and Del Galdo, Francesco and Fligelstone, Kim and Guiducci, Serena and Kowal-Bielecka, Otylia and van Laar, Jacob M. and Martucci-Cerinic, Marco and Müller-Ladner, Ulf and Riemekasten, Gabriela and Tarner, Ingo H. and Tyndall, Alan and Kennedy, Ann Tyrrell and Valentini, Gabriele and Vettori, Serena and Walker, Ulrich A. and Denton, Christopher and Distler, Oliver and Eustar Biobanking Group, . (2011) EUSTAR biobanking : recommendations for the collection, storage and distribution of biospecimens in scleroderma research. Annals of the rheumatic diseases, Vol. 70, H. 7. pp. 1178-1182.

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Official URL: http://edoc.unibas.ch/dok/A6004132

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Abstract

The European League Against Rheumatism Scleroderma Trials and Research Group (EUSTAR) has established an online database with clinical data of currently more than 8200 patients with systemic sclerosis (SSc). In addition to clinical research, EUSTAR fosters biomolecular studies to develop novel biomarkers and therapies for SSc. High-quality biospecimens are the basis for successful biomolecular studies. The EUSTAR biobanking group has therefore developed recommendations to standardise the collection, storage and distribution of SSc biospecimens at EUSTAR centres. These recommendations consider the scientific challenges associated with biomolecular research in SSc and the organisational requirements of EUSTAR. They were approved by the EUSTAR executive committee as well as the EUSTAR board. Once they become effective, these recommendations will be the basis for international EUSTAR studies with large numbers of SSc biospecimens. These recommendations might also be followed by other SSc consortia to enable exchange of biosamples between different SSc initiatives and might serve as a template for biobanking initiatives in other rheumatic diseases.
Faculties and Departments:03 Faculty of Medicine > Bereich Medizinische Fächer (Klinik) > Rheumatologie
03 Faculty of Medicine > Departement Klinische Forschung > Bereich Medizinische Fächer (Klinik) > Rheumatologie
03 Faculty of Medicine > Bereich Medizinische Fächer (Klinik) > Ehemalige Einheiten Medizinische Fächer (Klinik) > Rheumatologie FPS (Tyndall)
03 Faculty of Medicine > Departement Klinische Forschung > Bereich Medizinische Fächer (Klinik) > Ehemalige Einheiten Medizinische Fächer (Klinik) > Rheumatologie FPS (Tyndall)
03 Faculty of Medicine > Departement Biomedizin > Former Units at DBM > Rheumatologie FPS (Tyndall)
UniBasel Contributors:De Vere-Tyndall, Alan and Walker, Ulrich A.
Item Type:Article, refereed
Article Subtype:Research Article
Bibsysno:Link to catalogue
Publisher:British Medical Association
ISSN:0003-4967
Note:Publication type according to Uni Basel Research Database: Journal article
Identification Number:
Last Modified:27 Mar 2014 13:13
Deposited On:27 Mar 2014 13:13

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