Palliative Care in Children With Advanced Heart Disease in a Tertiary Care Environment: A Mini Review

Bergsträsser, Eva and Lukose, Saumya and Zimmermann, Karin and Oxenius, Angela. (2022) Palliative Care in Children With Advanced Heart Disease in a Tertiary Care Environment: A Mini Review. Frontiers in cardiovascular medicine, 9. p. 863031.

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Palliative care for children continues to evolve. More recently, this has also been true in the field of pediatric cardiology, particularly for children with advanced heart disease. In these children, similarly to children with cancer, treatment successes are offset by the risks of long-term morbidities, including premature death. This mini review aims to provide an overview of current knowledge on children suffering from advanced heart disease, their medical care during various phases of illness (including the palliative and end-of-life phase), symptom burden, experiences of parents, prognostic understanding of parents and physicians, and current status of the involvement of pediatric palliative care. In conclusion, the suffering of these children at the end of their young lives is pronounced and many parents feel prepared neither for medical problems nor for the child's death. An effective and mutually trusting partnership between pediatric cardiology and pediatric palliative care would appear to be a prerequisite for the timely involvement of palliative care in further supporting these children and their families.
Faculties and Departments:03 Faculty of Medicine > Departement Public Health > Institut für Pflegewissenschaft
UniBasel Contributors:Zimmermann, Karin
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Frontiers Research Foundation
Note:Publication type according to Uni Basel Research Database: Journal article
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Last Modified:02 Jun 2022 15:37
Deposited On:02 Jun 2022 15:37

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