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Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study

Kocher, Agnes and Simon, Michael and Dwyer, Andrew A. and Blatter, Catherine and Bogdanovic, Jasmina and Künzler-Heule, Patrizia and Villiger, Peter M. and Dan, Diana and Distler, Oliver and Walker, Ulrich A. and Nicca, Dunja. (2021) Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study. RMD Open, 7 (3). e001783.

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Abstract

We engaged patients with systemic sclerosis (SSc) and healthcare professionals to assess electronic health (eHealth) literacy and needs relating to web-based support using internet-based information and communication technologies (ICT).; We employed an explanatory sequential mixed methods design. First, we conducted a cross-sectional survey in patients (n=101) and professionals (n=47). Next, we conducted three focus groups with patients, family members and professionals (n=17).; Of patients, 89.1% used ICT at least weekly for private communication. Patients reported relatively high comprehension of eHealth information ([Formula: see text] =6.7, 95% CI: 6.2 to 7.3, range 1-10), yet were less confident evaluating information reliability ([Formula: see text] =5.8, 95% CI: 5.1 to 6.4) and finding eHealth apps ([Formula: see text] =4.8, 95% CI: 4.2 to 5.4). Patients and professionals reported little experience with web-based self-management support. Focus groups revealed 'considering non-ICT-accessible groups; '; and 'fitting patients' and professionals' technology; '; as crucial for acceptability. In relation to understanding/appraising eHealth, participants highlighted that general SSc information is not tailored to individual's disease course. Recommendations included 'providing timely, understandable and safe information; '; and 'empowering end-users in ICT and health decision-making skills; '; . Professionals expressed concerns about lacking resources. Patients were concerned about data security and person-centredness. Key eHealth drivers included 'addressing end-user perceptions; '; and 'putting people at the centre of technology; '; .; Patients and professionals need education/training to support uptake of eHealth resources. Key elements include guiding patients to timely/reliable information and using eHealth to optimise patient-provider communication. Design that is responsive to end-users' needs and considers individuals with limited eHealth literacy and/or ICT access appears to be critical for acceptability.
Faculties and Departments:03 Faculty of Medicine > Departement Public Health > Institut für Pflegewissenschaft
UniBasel Contributors:Kocher, Agnes and Simon, Michael and Blatter, Catherine and Bogdanovic, Jasmina and Künzler-Heule, Patrizia and Nicca, Dunja
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:BMJ Publishing Group
e-ISSN:2056-5933
Note:Publication type according to Uni Basel Research Database: Journal article
Language:English
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edoc DOI:
Last Modified:14 Sep 2021 14:45
Deposited On:14 Sep 2021 14:45

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