Repository logo
Log In
  1. Home
  2. Unibas
  3. Publications
  4. Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study
 
  • Details

Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study

Date Issued
2021-01-01
Author(s)
Kocher, Agnes  
Simon, Michael  
Dwyer, Andrew A.
Blatter, Catherine  
Bogdanovic, Jasmina  
Künzler-Heule, Patrizia  
Villiger, Peter M.
Dan, Diana
Distler, Oliver
Walker, Ulrich A.  
Nicca, Dunja  
DOI
10.1136/rmdopen-2021-001783
Abstract
We engaged patients with systemic sclerosis (SSc) and healthcare professionals to assess electronic health (eHealth) literacy and needs relating to web-based support using internet-based information and communication technologies (ICT).; We employed an explanatory sequential mixed methods design. First, we conducted a cross-sectional survey in patients (n=101) and professionals (n=47). Next, we conducted three focus groups with patients, family members and professionals (n=17).; Of patients, 89.1% used ICT at least weekly for private communication. Patients reported relatively high comprehension of eHealth information ([Formula: see text] =6.7, 95% CI: 6.2 to 7.3, range 1-10), yet were less confident evaluating information reliability ([Formula: see text] =5.8, 95% CI: 5.1 to 6.4) and finding eHealth apps ([Formula: see text] =4.8, 95% CI: 4.2 to 5.4). Patients and professionals reported little experience with web-based self-management support. Focus groups revealed 'considering non-ICT-accessible groups; '; and 'fitting patients' and professionals' technology; '; as crucial for acceptability. In relation to understanding/appraising eHealth, participants highlighted that general SSc information is not tailored to individual's disease course. Recommendations included 'providing timely, understandable and safe information; '; and 'empowering end-users in ICT and health decision-making skills; '; . Professionals expressed concerns about lacking resources. Patients were concerned about data security and person-centredness. Key eHealth drivers included 'addressing end-user perceptions; '; and 'putting people at the centre of technology; '; .; Patients and professionals need education/training to support uptake of eHealth resources. Key elements include guiding patients to timely/reliable information and using eHealth to optimise patient-provider communication. Design that is responsive to end-users' needs and considers individuals with limited eHealth literacy and/or ICT access appears to be critical for acceptability.
File(s)
Loading...
Thumbnail Image
Name

20210906092446_6135c23ec4716.pdf

Size

1.5 MB

Format

Adobe PDF

Checksum

(MD5):fdee77b44b86096872087e393d6f0331

University of Basel

edoc
Open Access Repository University of Basel

  • About edoc
  • About Open Access at the University of Basel
  • edoc Policy

Built with DSpace-CRIS software - Extension maintained and optimized by 4Science

  • Privacy policy
  • End User Agreement