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Clinicians and patients perspectives on follow-up care and eHealth support after allogeneic hematopoietic stem cell transplantation: A mixed-methods contextual analysis as part of the SMILe study

Leppla, Lynn and Mielke, Juliane and Kunze, Maria and Mauthner, Oliver and Teynor, Alexandra and Valenta, Sabine and Vanhoof, Jasper and Dobbels, Fabienne and Berben, Lut and Zeiser, Robert and Engelhardt, Monika and De Geest, Sabina and Smile study team, . (2020) Clinicians and patients perspectives on follow-up care and eHealth support after allogeneic hematopoietic stem cell transplantation: A mixed-methods contextual analysis as part of the SMILe study. European journal of oncology nursing : the official journal of European Oncology Nursing Society, 45. p. 101723.

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Official URL: https://edoc.unibas.ch/75781/

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Abstract

We report on our contextual analysis's methodology, as a first step of an implementation science project aiming to develop, implement, and test the effectiveness of an integrated model of care in SteM-cell transplantatIon faciLitated by eHealth (SMILe).; We applied an explanatory sequential mixed-methods design including clinicians and patients of the University Hospital Freiburg, Germany. Data were collected from 3/2017 to 1/2018 via surveys in 5 clinicians and 60 adult allogeneic stem-cell transplantation patients. Subsequently, we conducted 3 clinician focus groups and 10 patient interviews. Data analysis followed a 3-step process: (1) creating narrative descriptions, tables, and maps; (2) mapping key observational findings per dimension of the eHealth-enhanced Chronic-Care Model; (3) reflecting on how findings affect our choice of implementation strategies.; Current clinical practice is mostly acute care driven, with no interdisciplinarity and weak chronic illness management. Gaps were apparent in the dimensions of self-management support and delivery-system design. Health behaviors that would profit from support include medication adherence, physical activity and infection prevention. The theme "being alone and becoming an expert" underpinned patients need to increase support in hospital-to-home transitions. Patients reported insecurity about recognizing, judging and acting upon symptoms. The theme "eHealth as connection not replacement" underscores the importance of eHealth augmenting, not supplanting human contact. Synthesis of our key observational findings informed eight implementation strategies.; Stakeholders are willing towards a chronic care-focused approach and open for eHealth support. The contextual information provides a basis for the SMILe model's development and implementation.
Faculties and Departments:03 Faculty of Medicine > Departement Public Health > Institut für Pflegewissenschaft
UniBasel Contributors:Leppla, Lynn and Mielke, Juliane and Mauthner, Oliver and Valenta, Sabine and De Geest, Sabina M.
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Elsevier
ISSN:1462-3889
e-ISSN:1532-2122
Note:Publication type according to Uni Basel Research Database: Journal article
Identification Number:
Last Modified:30 Dec 2020 09:02
Deposited On:30 Dec 2020 09:02

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