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Schweizerisches Register für Patienten mit zystischer Fibrose : Planung, Programmierung, Ausführung und erste Beispiele der Anwendung

Schöni-Affolter, F. and Oswald, P. and Wandt-Baumann, C. and Kriemler, S. and Schöni, M. H.. (2000) Schweizerisches Register für Patienten mit zystischer Fibrose : Planung, Programmierung, Ausführung und erste Beispiele der Anwendung. Schweizerische medizinische Wochenschrift, Jg. 130, Nr. 39. pp. 1373-1381.

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Official URL: http://edoc.unibas.ch/dok/A5253334

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Abstract

The Swiss Registry for Cystic Fibrosis (SRCF) was designed to collect demographic, clinical and therapeutic data from patients with cystic fibrosis (CF) in Switzerland. It was designed, programmed and implemented for standalone application in Swiss cystic fibrosis centres. It is part of the European Registry for Cystic Fibrosis (ERCF), which has been implemented in Europe to collect data on the use and safety of dornase alpha (Pulmozyme) in the treatment of cystic fibrosis. At the time of first evaluation 245 cystic fibrosis patients are registered, their mean age is 13 years, and 17% are over 18. In larger databases in Germany or North America we observe comparable demographic data, similar degrees of severity and similar therapeutic approaches to those in Swiss cystic fibrosis patients. The aim of the Swiss Registry is to cover the maximum possible number of cystic fibrosis patients from this country.
Faculties and Departments:03 Faculty of Medicine > Departement Sport, Bewegung und Gesundheit > Bereich Sport- und Bewegungsmedizin > Sportmedizin (Schmidt-Trucksäss)
UniBasel Contributors:Kriemler, Susi
Item Type:Article, refereed
Article Subtype:Book Review
Bibsysno:Link to catalogue
Publisher:Benno Schwabe
ISSN:0036-7672
Note:Variant title: Swiss registry for cystic fibrosis : design, programming, implementation and first examples of use -- Note: Standartisierter englischer Titel: Swiss registry for patients with cystic fibrosis: design, programming, implementation and first examples of use -- Publication type according to Uni Basel Research Database: Journal item
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Last Modified:22 Mar 2012 14:24
Deposited On:22 Mar 2012 13:38

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