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Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life

Edvardsson, David and Baxter, Rebecca and Corneliusson, Laura and Anderson, Ruth A. and Beeber, Anna and Boas, Paulo Villas and Corazzini, Kirsten and Gordon, Adam L. and Hanratty, Barbara and Jacinto, Alessandro and Lepore, Michael and Leung, Angela Y. M. and McGilton, Katherine S. and Meyer, Julienne and Schols, Jos M. G. A. and Schwartz, Lindsay and Shepherd, Victoria and Skoldunger, Anders and Thompson, Roy and Toles, Mark and Wachholz, Patrick and Wang, Jing and Wu, Bei and Zuniga, Franziska. (2019) Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life. Gerontology & geriatric medicine, 5. p. 2333721419842672.

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Official URL: https://edoc.unibas.ch/71346/

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Abstract

To support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different countries have joined forces and launched the Worldwide Elements to Harmonize Research in LTC Living Environments (WE-THRIVE) initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context, workforce and staffing, person-centered care, and care outcomes, as these are critical to LTC quality, experiences, and outcomes. This article reports measurement recommendations for the care outcomes domain, focusing on previously prioritized care outcomes concepts of well-being, quality of life (QoL), and personhood for residents in LTC. Through literature review and expert ranking, we recommend nine measures of well-being, QoL, and personhood, as a basis for developing CDEs for long-term care outcomes across countries. Data in LTC have often included deficit-oriented measures; while important, reductions do not necessarily mean that residents are concurrently experiencing well-being. Enhancing measurement efforts with the inclusion of these positive LTC outcomes across countries would facilitate international LTC research and align with global shifts toward healthy aging and person-centered LTC models.
Faculties and Departments:03 Faculty of Medicine > Departement Public Health > Institut für Pflegewissenschaft
UniBasel Contributors:Zuniga, Franziska
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Sage
e-ISSN:2333-7214
Note:Publication type according to Uni Basel Research Database: Journal article
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Last Modified:07 Jul 2020 14:41
Deposited On:07 Jul 2020 14:41

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