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The European Competence Network on Mastocytosis (ECNM)

Valent, Peter and Arock, Michel and Bischoff, Stephan C. and Bühring, Hans-Jörg and Brockow, Knut and Escribano, Luis and Födinger, Manuela and Grabbe, Jürgen and Hartmann, Karin and Henz, Beate M. and Horny, Hans-Peter and Kluin-Nelemans, Hanneke C. and Lima, Margarida and Marone, Gianni and Orfao, Alberto and Parwaresch, Reza M. and Sillaber, Christian and Sotlar, Karl and Sperr, Wolfgang R. and Triggiani, Massimo and Van Doormaal, Jaap J. and Wolff, Klaus and Zuberbier, Torsten. (2004) The European Competence Network on Mastocytosis (ECNM). Wiener klinische Wochenschrift, 116 (19-20). pp. 647-651.

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Official URL: https://edoc.unibas.ch/70885/

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Abstract

The European Competence Network on Mastocytosis (ECNM) is a Europe-wide, multinational cooperative approach attempting to improve recognition, diagnosis, and therapy of mastocytosis. The network is composed of local centers, physicians, and scientists who have dedicated their work to patients with mastocytosis. However, because of the rarity and complexity of the disease, each single component in the network alone would fail to meet important demands and to reach solid conclusions in this field of applied medicine. The ECNM represents an attempt to overcome this restriction as a cooperative multicenter platform that should serve as an important basis for the development of new therapeutic strategies and diagnostic concepts, and for the standardization of techniques used to determine diagnostic and prognostic parameters. Moreover, using future central databases and registries, a suitable infrastructure for the development of co-operative multicenter clinical trials will be established. In addition, the ECNM is dedicated to provide the best available information about the disease to patients and physicians.
Faculties and Departments:03 Faculty of Medicine > Departement Biomedizin > Department of Biomedicine, University Hospital Basel > Allergy and Immunity (Hartmann)
UniBasel Contributors:Hartmann, Karin
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Springer
ISSN:0043-5325
Note:Publication type according to Uni Basel Research Database: Journal article
Identification Number:
Last Modified:10 Nov 2020 13:20
Deposited On:10 Nov 2020 13:20

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