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Palliative Care Initiation in Pediatric Oncology Patients: A Systematic Review

Cheng, Brian T. and Röst, Michael and De Clercq, Eva and Arnold, Louisa and Elger, Bernice and Wangmo, Tenzin. (2018) Palliative Care Initiation in Pediatric Oncology Patients: A Systematic Review. Cancer medicine. pp. 1-10.

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Official URL: https://edoc.unibas.ch/67101/

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Abstract

Palliative care (PC) aims to improve quality of life for patients and their families. The World Health Organization and American Academy of Pediatrics recommend that PC starts at diagnosis for children with cancer. This systematic review describes studies that reported PC timing in the pediatric oncology population. The following databases were searched: PubMed, Web of Science, CINAHL, and PsycInfo data-bases. Studies that reported time of PC initiation were independently screened and reviewed by 2 researchers. Studies describing pilot initiatives, published prior to 1998, not written in English, or providing no empirical time information on PC were excluded. Extracted data included sample characteristics and timing of PC discus-sion and initiation. Of 1120 identified citations, 16 articles met the inclusion criteria and comprised the study cohort. Overall, 54.5% of pediatric oncology patients re-ceived any palliative service prior to death. Data revealed PC discussion does not occur until late in the illness trajectory, and PC does not begin until close to time of death. Despite efforts to spur earlier initiation, many pediatric oncology patients do not receive any palliative care service, and those who do, predominantly receive it near the time of death. Delays occur both at first PC discussion and at PC initiation. Efforts for early PC integration must recognize the complex determinants of PC uti-lization across the illness timeline.
Faculties and Departments:08 Cross-disciplinary Subjects > Ethik > Institut für Bio- und Medizinethik
UniBasel Contributors:De Clercq, Eva
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Wiley
ISSN:2045-7634
Note:Publication type according to Uni Basel Research Database: Journal article
Identification Number:
Last Modified:10 Dec 2018 14:23
Deposited On:10 Dec 2018 14:23

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