Grief and loss for patients before and after heart transplant

Poole, Jennifer and Ward, Jennifer and DeLuca, Enza and Shildrick, Margrit and Abbey, Susan and Mauthner, Oliver and Ross, Heather. (2016) Grief and loss for patients before and after heart transplant. Heart and Lung, 45 (3). pp. 193-198.

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Official URL: https://edoc.unibas.ch/62837/

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OBJECTIVES: The purpose of the study was to examine the loss and grief experiences of patients waiting for and living with new hearts.
BACKGROUND: There is much scholarship on loss and grief. Less attention has been paid to these issues in clinical transplantation, and even less on the patient experience.
METHODS: Part of a qualitative inquiry oriented to the work of Merleau-Ponty, a secondary analysis was carried out on audiovisual data from interviews with thirty participants.
RESULTS: Patients experience loss and three forms of grief. Pre-transplant patients waiting for transplant experience loss and anticipatory grief related to their own death and the future death of their donor. Transplanted patients experience long-lasting complicated grief with respect to the donor and disenfranchised grief which may not be sanctioned.
CONCLUSIONS: Loss as well as anticipatory, complicated and disenfranchised grief may have been inadvertently disregarded or downplayed. More research and attention is needed.
Faculties and Departments:03 Faculty of Medicine > Departement Public Health > Institut für Pflegewissenschaft
UniBasel Contributors:Mauthner, Oliver
Item Type:Article, refereed
Article Subtype:Research Article
Note:Publication type according to Uni Basel Research Database: Journal article
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Last Modified:12 Jun 2018 18:11
Deposited On:12 Jun 2018 18:11

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