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A tailored web-based psycho-educational intervention for cancer patients and family caregivers

Northouse, L. L. and Schafenacker, A. M. and Barr, K. and Katapodi, M. C. and Yoon, H. and Brittain, K. and Song, L. and An, L.. (2014) A tailored web-based psycho-educational intervention for cancer patients and family caregivers. Cancer Nursing, 37 (5). pp. 321-330.

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Abstract

BACKGROUND:
Most programs addressing psychosocial concerns of cancer survivors are in-person programs that are expensive to deliver, have limited availability, and seldom deal with caregivers' concerns.
OBJECTIVE:
This study examined the feasibility of translating an efficacious nurse-delivered program (FOCUS Program) for patients and their caregivers to a tailored, dyadic Web-based format. Specific aims were to (1) test the preliminary effects of the Web-based intervention on patient and caregiver outcomes, (2) examine participants' program satisfaction, and (3) determine the feasibility of using a Web-based delivery format.
METHODS:
A phase 2 feasibility study was conducted with cancer patients (lung, breast, colorectal, prostate) and their family caregivers (N = 38 dyads). The Web-based intervention provided information and support tailored to the unique characteristics of each patient, caregiver, and their dyadic relationship. Primary outcomes were emotional distress and quality of life. Secondary outcomes were benefits of illness/caregiving, communication, support, and self-efficacy. Analyses included descriptive statistics and repeated-measures analysis of variance.
RESULTS:
Dyads had a significant decrease in emotional distress, increase in quality of life, and perceived more benefits of illness/caregiving. Caregivers also had significant improvement in self-efficacy. There were no changes in communication. Participants were satisfied with program usability, but recommended additional content.
CONCLUSIONS:
It was possible to translate a clinician-delivered program to a Web-based format that was easy to use and had positive effects on dyadic outcomes.
IMPLICATIONS FOR PRACTICE:
The Web-based program is a promising way to provide psychosocial care to more patients and caregivers using fewer personnel. It needs further testing in a larger randomized clinical trial.
Faculties and Departments:03 Faculty of Medicine > Departement Public Health > Institut für Pflegewissenschaft > Pflegewissenschaft (Katapodi)
UniBasel Contributors:Katapodi, Maria C
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Lippincott Williams & Wilkins
ISSN:0162-220X
e-ISSN:1538-9804
Note:Publication type according to Uni Basel Research Database: Journal article
Language:English
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Last Modified:30 May 2018 12:19
Deposited On:04 Dec 2017 09:16

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