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Integrating Advance Research Directives into the European Legal Framework

Andorno, Roberto and Gennet, Eloïse and Jongsma, Karin and Elger, Bernice. (2016) Integrating Advance Research Directives into the European Legal Framework. European Journal of Health Law, 23 (2). pp. 158-173.

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Official URL: http://edoc.unibas.ch/45078/

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Abstract

The possibility of using advance directives to prospectively consent to research participation in the event of dementia remains largely unexplored in Europe. Moreover, the legal status of advance directives for research is unclear in the European regulations governing biomedical research. The article explores the place that advance research directives have in the current European legal framework, and considers the possibility of integrating them more explicitly into the existing regulations. Special focus is placed on issues regarding informed consent, the role of proxies, and the level of acceptable risks and burdens.
Faculties and Departments:08 Cross-disciplinary Subjects > Ethik > Institut für Bio- und Medizinethik > Bio- und Medizinethik (Elger)
03 Faculty of Medicine > Departement Public Health > Ethik in der Medizin > Bio- und Medizinethik (Elger)
UniBasel Contributors:Elger, Bernice Simone and Andorno, Roberto and Gennet, Eloïse
Item Type:Article, refereed
Article Subtype:Research Article
Publisher:Nijhoff
ISSN:0929-0273
e-ISSN:1571-8093
Note:Publication type according to Uni Basel Research Database: Journal article
Identification Number:
Last Modified:26 Oct 2017 14:51
Deposited On:26 Oct 2017 14:51

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