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Maintaining confidentiality in prospective studies: anonymous repeated measurements via email (ARME) procedure

Carli, Vladimir and Hadlaczky, Gergö and Wasserman, Camilla and Stingelin-Giles, Nicola and Reiter-Theil, Stella and Wasserman, Danuta. (2012) Maintaining confidentiality in prospective studies: anonymous repeated measurements via email (ARME) procedure. Journal of medical ethics, Vol. 38, H. 2. pp. 127-129.

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Official URL: http://edoc.unibas.ch/dok/A6002692

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Abstract

Respecting and protecting the confidentiality of data and the privacy of individuals regarding the information that they have given as participants in a research project is a cornerstone of complying with accepted research standards. However, in longitudinal studies, establishing and maintaining privacy is often challenging because of the necessity of repeated contact with participants. A novel internet-based solution is introduced here, which maintains privacy while at the same time ensures linkage of data to individual participants in a repeated measures design. With the use of the anonymous repeated measurements via email (ARME) procedure, two separate one-way communication systems are established through ad hoc email accounts and a secure study website. Strengths and limitations of the approach are discussed.
Faculties and Departments:08 Cross-disciplinary Subjects > Ethik > Institut für Bio- und Medizinethik > Bio- und Medizinethik (Elger)
03 Faculty of Medicine > Departement Public Health > Ethik in der Medizin > Bio- und Medizinethik (Elger)
03 Faculty of Medicine > Departement Public Health > Ehemalige Einheiten Public Health > Medizin- und Gesundheitsethik (Reiter-Theil)
UniBasel Contributors:Reiter-Theil, Stella and Stingelin-Giles, Nicola
Item Type:Article, refereed
Article Subtype:Research Article
Bibsysno:Link to catalogue
Publisher:BMJ Publishing Group
ISSN:0306-6800
Note:Publication type according to Uni Basel Research Database: Journal article
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Last Modified:24 May 2013 09:11
Deposited On:26 Apr 2013 06:59

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