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[A challenge in spite of acceptance - how mothers of newborn babies with a "cleft" experience the transition from the hospital back home]

Sieber, M. and Ullmann-Bremi, A. and Baenziger, O. and Spirig, R.. (2008) [A challenge in spite of acceptance - how mothers of newborn babies with a "cleft" experience the transition from the hospital back home]. Pflege, Vol. 21. pp. 299-307.

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Official URL: http://edoc.unibas.ch/dok/A6007179

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Abstract

There is almost no empirical data about how mothers of newborn babies with a cleft lip and/or palate manage the transition from the hospital to home. This qualitative study therefore focuses on the experiences of mothers of newborn babies with a cleft lip and palate. Two problem-oriented interviews were conducted with five women. Using a qualitative content analysis, one main category and four sub-categories were defined. The main category called "receive the right kind of help" shows that the women depended on different types of support, concerning various topics from the diagnosis to everyday family life. This is reflected in the sub-categories: a) it is the way it is, b) sudden disappearance of the child, c) time-consuming and difficult nutrition and d) master everyday family-life. These sub-categories display the experiences of mothers of newborn babies with a cleft lip and palate during the transition from hospital to home and point to the big challenge of these mothers in transition. Most important is that health professionals seek to better understand mothers' experiences in this important phase in order to optimize both the support in hospital and outpatient facilities.
Faculties and Departments:03 Faculty of Medicine > Departement Public Health > Ehemalige Einheiten Public Health > Klinische Pflegewissenschaft (Spirig)
UniBasel Contributors:Spirig, Rebecca
Item Type:Article, refereed
Article Subtype:Research Article
Bibsysno:Link to catalogue
Publisher:Hans Huber
ISSN:1012-5302
Note:Publication type according to Uni Basel Research Database: Journal article
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Last Modified:07 Dec 2012 13:03
Deposited On:07 Dec 2012 12:59

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