edoc

Sociocultural and psychological features of perceived stigma reported by people with epilepsy in Benin

Rafael, F. and Houinato, D. and Nubukpo, P. and Dubreuil, C. M. and Tran, D. S. and Odermatt, P. and Clement, J. P. and Weiss, M. G. and Preux, P. M.. (2010) Sociocultural and psychological features of perceived stigma reported by people with epilepsy in Benin. Epilepsia, Vol. 51, H. 6. pp. 1061-1068.

Full text not available from this repository.

Official URL: http://edoc.unibas.ch/dok/A5843022

Downloads: Statistics Overview

Abstract

Summary Purpose: Stigma is a major burden of epilepsy. In sub-Saharan Africa the few studies that addressed epilepsy stigma emphasize enacted, rather than perceived, stigma. This inattention may compromise clinical management and delay help seeking, thereby contributing to the treatment gap. We assessed perceived stigma and identified sociocultural and psychological factors explaining greater stigma among people with epilepsy (PWE) in Benin. Methods: PWE included in this study were ascertained using a door-to-door survey in the general population in a Beninese rural area. We applied both qualitative and quantitative research methods to assess stigma and patient's experience and beliefs. An Explanatory Model Interview Catalogue (EMIC) and verbally administered questionnaires provided data for demographic, clinical, and sociocultural features. Sociocultural features were evaluated in terms of illness-related experience and sociocultural representations of epilepsy. Depression and anxiety were also screened. Results: Eighty PWE were included. About 68.7% reported feeling stigmatized. Multivariate regression revealed that factors independently associated with perceived stigma were experience of social isolation (p > 0.001), experience of marital problems (p > 0.01), and presence of anxiety disorder (p > 0.01). Discussion: Perceived stigma is an important issue in epilepsy in Benin. Social factors seem to be more influential than sociocultural representation of epilepsy. Insofar as research is needed in other African countries to determine the nature and relevant features of stigma to improve treatment and control
Faculties and Departments:09 Associated Institutions > Swiss Tropical and Public Health Institute (Swiss TPH) > Department of Epidemiology and Public Health (EPH) > Eco System Health Sciences > Health Impact Assessment (Utzinger)
UniBasel Contributors:Weiss, Mitchell G. and Odermatt, Peter
Item Type:Article, refereed
Article Subtype:Research Article
Bibsysno:Link to catalogue
Publisher:Elsevier
ISSN:0013-9580
Note:Publication type according to Uni Basel Research Database: Journal article
Related URLs:
Identification Number:
Last Modified:08 Jun 2012 06:55
Deposited On:08 Jun 2012 06:46

Repository Staff Only: item control page