Ruhe, Katharina M.. Patient Participation in Pediatric Oncology : Providing Children and Adolescents with Opportunities to Develop Autonomy. 2016, PhD Thesis, University of Basel, Faculty of Medicine.
Restricted to Repository staff only until 1 January 2026.
Official URL: http://edoc.unibas.ch/diss/DissB_11977
Decision-making capacity is a concept that is still largely under theorized in pediatric healthcare as most research is carried out on adults. However, it is an important requirement with regard to children’s and adolescents’ ability to transform choices into legally binding decisions. Additionally, it plays a crucial role in children’s overall participation in healthcare since many professional guidelines emphasize the importance of harmonizing the nature and extent of pediatric patients’ participation with their capacities. Empirical research on children’s and adolescents’ participation in healthcare is scarce. Hence, little is known about how they involved in their care, what challenges such practices bring upon the triad of patient, parent, and physician, and how exactly minor patient’s involvement can be adapted to their abilities.
Consequently, the aim of the present research is to closely examine the concepts of decision-making capacity and participation in pediatrics using a combination of theoretical and empirical approaches. This doctoral work provides insight into both practical and conceptual aspects of children’s and adolescents’ autonomy in healthcare.
|Advisors:||Wangmo, Tenzin and Elger, Bernice S. and Niggli, Felix|
|Faculties and Departments:||08 Interdisciplinary Institutions > Ethik > Institut für Bio- und Medizinethik > Bio- und Medizinethik (Elger)|
|Bibsysno:||Link to catalogue|
|Number of Pages:||1 Online-Ressource (205 Seiten)|
|Last Modified:||20 Apr 2017 08:26|
|Deposited On:||20 Apr 2017 08:26|
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